No picture this time. I’m running late today and have fifteen minutes to throw this blog together. I must work well under pressure.
I mentioned in earlier blogs that I was part of a study for a new drug called Lapadnib. This is a drug that has shown great promise for people like me who doesn’t respond well to Herceptin. The next step … as it were. Well, I was on the study for about six weeks before Lapadnib was approved by the FDA and released for general treatment. Rather than travel the hour or so to Illinois every three weeks, I opted to continue my treatment with my regular oncologist and began the process of getting insurance approval, check out distribution …yadda, yadda, yadda.
So, despite starting this process nearly three weeks ago, I just got the okay yesterday for delivery of Lapadnib (or rather, Tykerb as it is now called). I’ve now gone four days without the drug and should be resuming it tomorrow. Lovely. Hopefully this will do nothing to interrupt my treatment
I can almost say I understand the delay. You’ll note I say “almost†… important note there. It is an extremely expensive drug and there is no way I could afford it without insurance. I’m sure my insurance company hates me because of the expense I’m putting it through. But at this point in my life … tough sh*t.
A life threatening condition should not be up for debate. Especially if steps can be taken to treat it.
So, I’m curious to know if there are other Cancer Winners out there who are on this Tykerb and if so, how are you feeling? Any side effects? I’ve had more side effects from the accompanying Xeloda than from the Tykerb, but I’m interested in knowing if anyone is experiencing any by way of side effects.
Repeat after me … “YOU ARE A CANCER WINNERâ€